24-25 November 2012 – “We Have a Drug Problem” – Public Conference hosted by UAEM, Healthy Skepticism UK and PharmAware
During this event at Imperial College, London, Katrina Perehudoff spoke on behalf of HAI Europe. The presentation “Unlocking the mysteries of access to clinical trials data in the EU” is available here.
Other speakers included Ben Goldacre, Katy Athersuch (MSF), Deborah Cohen (BMJ) and honorary life member of HAI Europe, Andrew Herxheimer. The poster of the event can be viewed here.
16 November 2012 – PARTICIPATION, ETHICS AND TRANSPARENCY: What citizens want from Brussels
Presented and organised by the ALTER Citizens project partners (www.eu-citizens.org)
With the support of the Austrian Trade Union Federation ÖGB and the Arbeiterkammer.
Session one: The link between ethics regulation and citizens’ trust: what can be learnt from the European Parliament experience and how can it be used for enhanced citizens’ participation in Brussels and Member States?
Session two: Transparency and citizen participation: openness towards trust and better dialogue
13 November 2012 – TRANSPARENCY IN MEDICAL RESEARCH TO PROTECT PUBLIC HEALTH: Opening up EU clinical trial data for safe and effective medicines
Presented by MEPs Peter Liese (EPP) and Margrete Auken (Greens/EFA), organised with support from Trans-Atlantic Consumer Dialogue (TACD) and Health Action International (HAI) Europe.
- Dr. Ben Goldacre
- Prof. Dr. Peter Gøtzsche
- Dr. Trudo Lemmens
13 October 2012 – Annual General Meeting for Members of the HAI Europe Association
For more information please contact Rose de Groot.
12 October 2012 – HAI Europe Open Seminar ‘Safety flu out the window: Access to medicines safety data’
Het Trippenhuis, Amsterdam, the Netherlands
Welcome words: Dr. Joel Lexchin, Chair of the HAI Europe Association Board
- Ms. Deborah Cohen, British Medical Journal (BMJ)
- Dr. Peter Gøtzsche, Nordic Cochrane Centre / Powerpoint Presentation
- Dr. Tom Jefferson, Cochrane Acute Respiratory Infections (ARI) Group
- Mr. Fergal O’ Regan, Office of the European Ombudsman
- Dr. Hans-Georg Eichler, European Medicines Agency (EMA) / Powerpoint Presentation
Discussion panel with respondents from:
- Ms. Teresa Leonardo Alves, La Revue Prescrire / Powerpoint Presentation
- Mr. Tamás Bereczky, European AIDS Treatment Group (EATG)
- Ms. Irene Schipper, Centre for Research on Multinational Corporations (SOMO)
The programme is available here.
Please have a look at our Facebook page for pictures of the HAI Europe Open Seminar.
Videos of the presentations are available on our Youtube channel.
10 October 2012 – Event in European Parliament – Why Europe’s researchers and academics want a clear open access policy in Horizon 2020
Sponsored by MEP Ioannis A. Tsoukalas (EPP), MEP Luigi Berlinguer (S&D) and MEP Philippe Lamberts (Greens/EFA) and organized with support from TACD & HAI Europe
European Parliament, Brussels, Belgium
07 June 2012 – Roundtable – HORIZON 2020 for a more sustainable and fairer knowledge society: What role for the citizen, civil society and the public good?
The Horizon 2020 NGO alliance invites members of the European Parliament, representatives from the European Commission, from research institutions and from NGOs to discuss its demand for a strong involvement of civil society in research programmes.
06 June 2012 – Lunch Debate: Opening up medical research data for an ethical and efficient EU policy
As the European Parliament considers the EU’s framework programme for research and innovation, Horizon 2020, and will soon discuss the EU’s Clinical Trial Directive, European lawmakers have a unique opportunity to lead the way toward opening up health-sensitive research data with the aim of ending wasteful repetition and the promotion of scientific transparency. More and more voices in the scientific community feel that data sharing would lead to tremendous benefits for patients, progress in science, and far more rational use of healthcare resources based on evidence we can trust.
- Peter C Gøtzsche (The Nordic Cochrane Centre) – Why we need to open up health research by sharing our raw data
- Wolf-Dieter Ludwig (Drug Commission of the German Medical Association) – Patient and drug safety require mandatory disclosure of clinical study reports – The clinicians’ perspective
This event was hosted by MEP Christel Schaldemose (S&D), MEP Peter Liese (EPP) and MEP Margrete Auken (Greens/EFA). HAI Europe supported this lunch debate, together with the Trans-Atlantic Consumer Dialogue (TACD).
21 May – 26 May 2012 – 65th World Health Assembly